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He is for treatment because the only drug that can help the rare genetic condition of 2-year-old Haoyang is not sold anywhere in China and the border is closed due to the Covid-19 pandemic. I can’t travel to. Instead, his desperate father, Xu Wei, set up a home lab to create a cure for the boy himself. Haoyang has Menkes syndrome. Menkes syndrome is a hereditary disorder that affects how copper, which is essential for the development of the brain and nervous system, is processed in the body.
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