Parents explain the horrifying moment their doctor told them they had six weeks to save their baby by raising $ 3.2 million for specialized endometrial surgery.

Zofia Fenrych is currently 37 weeks pregnant with a severely ill child who is in desperate need of heart surgery in utero.

Zofia Fenrych, 40, is currently pregnant with her second daughter, Dorothea, for 27 weeks.Rob Beres

  • The fetuses of Rob Velez and Zofia Fenrych are in urgent need of endometrial heart surgery.

  • Without complicated surgery, she has only a 10 to 20 percent chance of survival.

  • British baby families are only available in the United States and need to raise $ 3.2 million to fund surgery.

Zofia Fenrych was delighted when she first saw the fetus on a regular ultrasonography on February 5, 2022, at the 16th week of gestation.

“She was sucking her thumb and moving around,” said a 40-year-old insider. Her partner, Rob Beres, 49, could barely suppress his excitement when he saw her screen together and expected her second daughter.

The radiologist was talkative, but suddenly silenced. According to Ferch, she examined the baby’s heart “a little too long.” Then the medical expert said something might be wrong.

It took an hour for the experts to arrive. “From this happy moment when I first met her, I went to this abyss, wondering what the problem was,” said Fenrich, who lives 30 miles south of London, England.

The consultant told the couple that they had a child they named Dorothea. Hypoplastic left heart syndrome, A condition in which the left side of an organ is not chronically developed and is often described as “missing.” Without highly specialized endometrial surgery performed during pregnancy, the chances of survival are small.

The mother who is going to be a mother is said to have been “pushed” by the doctor and ended. But she and her partner are determined to spot her pregnancy.

Fenrich said doctors described the flaw as “terrible” and she sought dismissal. “She said it was so easy, but we just saw our baby playing in my belly. We loved her.

Rob Beres, Zophia Fenrich and her daughter Bathsheba, 2, are excitedly waiting for their sister to arrive.

Parents Rob Beres and Zophia Fenrich and two and a half year old daughter Bathsheba. The girl sings to her unborn sister.Rob Beres

They visited a professional fetal cardiologist two days later. He confirmed the diagnosis and drew a picture of Dorothea’s heart on a piece of paper to explain the task. Fenrich said doctors warned that continuing pregnancy meant “lifestyle changes.”

Consultants explain that Dorothea needs surgery about three days after birth to reconstruct the heart and veins, another surgery three to six months later, and a third surgery at age three. Did. He said that when Dorothea reaches her teens, she is likely to need a heart transplant. In terms of life expectancy, his record states that patients with the same condition as Dorothea have a survival rate of 60% at age 5.

However, Beres and Fenrich, who follow the Catholic faith, argued that the end was out of the question.

Fenrych asked the doctor if her daughter could have a normal childhood. “This was the most important thing for me,” she said. His answer was “yes”.

Fenrych told Insider that Velez, a partner in healthcare funding startups, is a “natural investigator.” He spent days investigating hypoplastic left heart syndrome online and found some success stories about children born with it.Survivors included a skilled 17-year-old child ballerina, I hadn’t had an organ transplant yet in 2019. “She was inspired and gave us her hope,” Fenrich said.

According to Beres, doctors said the non-genetic condition was a “perfect fluke” and occurred at conception. They haven’t talked to a 2-year-old kid about this issue. Homeopathic Fenrich said, “Drotea begins to kick, kisses and sings.”

Eight weeks later, the doctor dealt with the tougher news.Dorotea requires endometrial surgery to survive, which can only be done in the United States

Over the course of a few weeks, Fenrich underwent a series of medical examinations. However, on April 5, when she was 24 weeks gestation, echocardiography of her fetus showed serious complications.

An ultrasound scan of Dorothea, taken at Fenrich's 16th week of pregnancy, detected a problem with her heart.

Dorothea’s first ultrasonography, performed 16 weeks after her mother’s pregnancy, revealed heart problems. Her parents were told by medical staff that “half of her heart was’missing’.”Rob Beres

There was an obstruction in Dorothea’s heart, which spilled into her lungs. Doctors said removing the obstruction can only be attempted in utero.

An important operation known as Fetal atrial septal defect, Must be completed between 28 and 32 weeks gestation. Without intervention, Dorothea is 10-20% more likely to reach the age of 5, medical experts write in their report.

Doctors said that delicate surgery would increase her life potential to 87%.

However, it is not available in the UK. “We felt deprived of hope,” Fenrich told insiders.

But it wasn’t completely stolen.My parents consulted with Dr. Shane Morris, A major fetal cardiac surgeon at the Texas Children’s Hospital in Houston. She succeeded in her surgery several times. Morris contacted her couple’s doctor in London and agreed to treat Dorotea in the United States.

Endometrial surgery is performed by inserting a needle into the baby’s heart from the mother’s belly and uterus.

so YouTube video Morris described the process of fetal atrial septal defect and said a balloon or stent was placed in the fetal heart and inserted through the mother’s abdomen.

“These babies can’t push blood out of the left ventricle, so they rely on the holes in the upper chamber of the heart to circulate the blood,” Morris said, and in severe cases the entrance is blocked. He added that it would be.

“We provide a procedure for drilling a hole in the upper part between the chambers in the upper part of the heart.”

According to doctors, Fenrich, now 27 weeks gestation, can be treated within 6 weeks before Dorothea’s lungs are so damaged that treatment is ineffective.

The total cost of intrauterine surgery and two surgeries after the birth of Dorothea is approximately £ 2.5 million ($ 3.2 million). “Drotea is our daughter and we will do everything we can to save her life,” he added, “so we will fight,” Beres told insiders.

They are backed by a charity of British children, Tree of hope.. This organization helps families raise money for the treatment of children who are not covered by the national health service.this is Appeal to DorothéeSo far, a has raised £ 9,700 ($ 12,400) out of its current goal of £ 1.6 million ($ 2 million).

“Our daughter’s case has moved a lot in this world,” Fenrich said. “She hasn’t been born yet, but the people have been very kind.”

“All the love and support we receive is part of Dorothea’s miracle,” she added.

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