Parents of children with special needs face challenges with essential COVID vaccines


Like most teenage boys, 14-year-old Jonathan Smythe is engaged in activities that he is passionate about, such as swimming, dancing and bowling. But for him and his Vancouver-based family, perhaps their greatest pursuit is to keep him alive.

Smythe was born with multiple health complications, including CHARGE syndrome (hereditary disorder), Goldenhar syndrome (rare congenital disorder), and epilepsy. But even a common cold is deadly to him, and his organs quickly break down. He almost died when his lungs were filled with his own secretions in the recent horror of landing him in the hospital.

“We almost lost him many times,” said his mother, Debbie. He asked to use a pseudonym to keep their identities secret.

When doing so Approved by Health Canada With the COVID-19 vaccination of a 12-year-old youth, Debbie confirmed that his son was the first to line up. Inoculation was a natural choice, even with limited information on vaccine safety records.

“For him, if he died because he was shot, he would have died because we were trying to save his life,” she said. “But for us, it was worth the risk.”

19-year-old Kalvin Niebel in Ile de Chenes, Manitoba, involves a group of different variables.

Nibel has both physical and cognitive deficits associated with his cerebral palsy. He also suffers from life-threatening allergies, has EpiPen, and almost died after receiving half the flu vaccine as a child. Not surprisingly, his doctor advised his parents not to vaccinate him.

Given the situation of his son, Nibel’s parents need to evaluate the data beyond what is safe for healthy people.

“Parents of children with special needs are organically categorized in this category where we do our own research. When doctors propose treatments, we have all the pros and cons. You need to learn, “said her mother, Stacy Nibel.

“I’m not saying this vaccine is bad. We’re not doing long-term research, so we’ll wait at this point to see what the results of this vaccine will be. Did.”

Parents of children at high risk due to disability should weigh the potential for their child to become infected with COVID-19 and the potential side effects of vaccination.

Balbir Grewal addresses that question almost every day. When her son, Karan, was six years old, he suffered a tragic setback when his autoimmune system attacked his spinal cord and caused transverse myelitis. He remained quadriplegic and for the past eight years she and her husband had to evaluate all medical decisions based on the information they could collect.

The cultural conversation surrounding the COVID vaccine is becoming polarized, and too many people portray their ideological enemies as modern Boogeymen.

“I feel it’s so politicized, it’s competing with each other and you feel you’re being judged for your decision,” she said. “And to me, I feel like I’m on a roller coaster. I think I should do it one day, but not the next.”

“I don’t think it should be mandatory”

Vaccine mandates have begun in some states this month. Manitoba Quebec has already created a vaccine passport. British ColumbiaPassports came into effect this week, Ontario and Newfoundland promised to offer their own version this month, and Nova Scotia announced similar plans.

By having to prove the status of vaccination, some special needs families wonder if more information will be added to their passports and how long the restrictions they face to not vaccinate their children will continue. I am thinking.

Cheryl Soehn of Sally, British Columbia is one of their parents. Her son, Maxx, suffers from Down’s syndrome and autism, as well as heart disease with endocardial cushioning and ventricular septal defects. For now, she is reluctant to vaccinate Maxx.

“Passports restrict Maxx from going to many areas and I don’t think it’s required,” Soehn said.

She is also worried that passports could be a gateway to more threats to privacy, and whether passports will be expanded to include more medical requirements, or worse, already in Canada in 2019. I wonder if computer hackers using medical records are at risk.

“When I was vaccinated, I used to get a card. Why do I get a barcode with information that could be hacked? So now you have a hacker breaking into it. I’m opening the door to do it. It happens every day. There’s nothing safer anymore. “

Different passport models vary slightly from state to state.of Manitoba When British ColumbiaFor example, there is no tax exemption, Quebec The guidelines grant exemptions to those who meet certain criteria. Newfoundland suggests it is likely to adopt the Quebec model, but Ontario’s actions remain uncertain as authorities are still planning policies.

Quebec Website The protocol overview for vaccine passports does not mention potential end dates or reassessment dates.The same is true Manitoba COVID-19 website. In British Columbia, vaccination certification measures are assumed to be temporary and January 31, 2022.

The Epoch Times has repeatedly contacted the British Columbia Department of Health and the Quebec Department of Health and Social Services, but did not receive a response.

State spokesman Manitoba Health and Senior Care In a statement provided to the Epoch Times, he said: As a result of these discussions, we were able to coordinate our vaccination campaigns and focus on addressing their needs. “

However, Nibels has questioned the validity of those arguments, seeing that Calvin’s treatments, activities and social opportunities have virtually disappeared.

Carbyne’s father, Larry, who races cars as a hobby, says he can’t take his son to the speedway as a spectator until he’s vaccinated. Calvin is also not allowed to participate in professional sporting events or other activities in Manitoba. And because Calvin’s remedies are offered through an educational system that includes programs to prepare for after-school life, he has lost an important part of his development.

“By doing this, they literally quarantined the entire group of people here,” said Larry Nibel.

“I don’t think we should impose restrictions on children. We do not impose restrictions on children. He plays baseball and rides quads, and these are the efforts of his entire family. That’s it. If you remove it, he won’t be in place today. “

Jeff Sandes